Its definitely good to have someone to talk to who can relate to what seems to be a relatively unique experience. Though the more research I do, the more I suspect this condition is less unique than drastically under diagnosed.
Having recovered from the elation of a diagnosis, I've now hit the reality come down! It is still amazing to know why I am in so much pain and know there is an operation to improve or hopefully cure symptoms. BUT it is truly daunting to know I face two separate hip operations, each requiring a 3 - 6 month recovery. It is going to take a year to be back to what I should be and I'm juggling a baby and preschooler too!
In fact I'm utterly riddled with anxiety about the whole thing:
1 Anesthetic for hip arthroscopy (if I wasn't so scared of anesthetics I would've had a boob job by now!!)
2 Traction to open up hip socket during hip arthroscopy...ewwww
3 If hip socket is worse than anticipated when they open me up, if there is much arthritis as a result of the FAI and labral tear injuries, then there is less chance of the operation working.
4 Hip pain when coming round from hip arthroscopy.
5 How I'm going to cope on crutches for at least 4 weeks.
7 What if the hip arthroscopy doesn't work for me (there are 'many' stories of this, though mainly as under qualified surgeons only addresses the labral tear and not the underlying cause, fai)
8 All of the possible complications.
9 Even if the whole process is awful I still have to go back and have 2nd hip fixed!
....But on the other hand I keep seeing adverts for Stanner Stair lifts and thinking hmmmm, when can I book in??
So I have booked for mid July, but asked Professor Schilder's secretary to keep me on a cancellations list as the less time I have to the build up the better, trust me on that one! This is worse than waiting to go into labour!
Ok, no, writing negative lists isn't going to help, so lets try for 9 positives?????
1 My consultant inspires confidence with high success rates etc.
2 Hospital drugs are usually great fun.
3 I'm covered by Bupa so I'll have the luxury of a private room.
4 I should come round from the anesthetic in time to watch loose women!
5 I like school dinner type meals.
6 Been on crutches might elicit some sympathy, whereas now I look normal and people don't understand.
7 I'll not have to change any nappies for at least 4 weeks.
8 I'll get quality time with me!!! (any mum will understand that!)
9 ...and finally...I might 'just' get my life back!
OK I feel a lot better now I've given myself a pep talk! Better dash, nappies to change!